Today, in Prime Minister’s Questions in the Houses of Parliament in the UK, Josh Newbury MP powerfully raised the case of his constituent, Connor Edwards, who lives with Ehlers-Danlos syndrome (EDS) and craniocervical instability (CCI). At just 30 years old, Connor’s condition has left him largely bed-bound and forced to crowdfund for life-changing treatment abroad. We are grateful to Josh Newbury MP for shining a spotlight on Connor’s experience and on the thousands of people like him with EDS

Stretchy skin, hyper-mobility, and chronic pain — this is what it's like to live with Ehlers-Danlos syndrome. | Brut